Archive for September, 2009

Church Pews vs Seats

September 30, 2009 Leave a comment

Reading this post on the Arthritis Care (27th Sept 2009), made me grateful that the seating arrangements in a quaker meeting are much more friendly than a traditional UK church.

I’ve always been aware that churches are really uncomfortable for old people yet most people who go to church are old. Go figure.

All the quaker meetings I’ve attended have had comfortable high back chairs, with arms so you can get up easily. There are usually an assortment of other chairs.  In fact one meeting I went to even had cushioned foot rests and fleecy blankets to put over your knees. Even better, people weren’t afraid to use them.  Any organised religion that has comfy chairs and fleecy blankets is a winner in my book, whether you have arthritis or not!

Categories: Psoriatic Arthritis Tags: , ,

Boost your immune system? No thanks

September 29, 2009 Leave a comment

A link to a rather long and rambling post that makes some good points

There is a current craze to “boost” or “support” your immune system/function.  As this article points out, unless you are undergoing a few specific types of cytotoxic chemotherapy then there is no scientifically proven way of “boosting” your immune system. It also goes on to point out that boosting your immune system will probably do more harm than good. Chronic inflammation in your body is not good and may be one of the reasons why people with rheumatoid arthritis have a lower life expectancy (by about three years) than people without rheumatoid arthritis.

The truth of the matter is most potions too boost your immune system don’t work (there fore they only harm they are doing is bleeding money out of your bank account). If any do work, it is likely they will provoke an inflammatory response which, long term is a bad thing.

As someone with an autoimmune disease, I realise what a difficult balancing act your immune system has and I sure don’t want to try and mess with that.  Quite frankly, the last thing I need is a stronger immune system, it would only do more damage!

Categories: Psoriatic Arthritis

Evidence Based Medicine – Treatment Guidelines for Psoriatic Arthritis

September 15, 2009 Leave a comment

Here is an article from October 2008, with clinical guidelines for treating psoriatic arthritis. It is technical, but it clearly spells out how to identify different categories of arthritis, mild, moderate and severe, although the authors point out these categories need not be rigidly applied.

It’s a bit easier to read if you download the pdf version. It’s nice to have a reference to the science, rather than a bunch of sites telling me that I need to eat their diet and  I will be “cured”. Really, if anyone COULD cure this they would be both rich and famous and not trying to make money by selling books and vitamins online.

National Psoriasis Forum – Steroids and Lectures

September 3, 2009 Leave a comment

Here are two links that I want to be able to find again, so I’ll tag them and post them here.

The National Psoriasis Forum are based in America, they have a lively psoriatic arthritis discussion forum.

Topical Steroids Potency Chart This is a list of different types of steroids, graded by “strength”.

The also have webcasts on a range of different subjects.

That’s all.

Book Reviews on arthritis and Quakerism (!)

September 2, 2009 Leave a comment

arthritic quaker books-WEB

I have written a few book reviews (they are short and sweet!). If you have read any of these books, please let me know what you think. I hope to add a few more over time, there are quite a few quaker books that are only available through the quaker book shop, so I will post about those separately.

There are a few books about Quakers and a few books about living with pain. I should probably separate them into two separate categories but I quite like having them all mixed up (a bit like my life really…)  If you have any suggestions of books you have enjoyed I’d be happy to hear from you.

Disclaimer: Remember not all quakers are arthritic and arthritis doesn’t only affect quakers 🙂