Things I can do on methotrexate…
Last year I started taking methotrexate. The first 4 months were rough. The first 2 months were really rough. On the plus side after about 6 months I started noticing some changes, and gradually, bit by bit things have started getting better.
1 I have more energy, I no longer feel like I have to lie down at 4pm because I physically can’t keep going.
2 I can think better – thinking is easier, faster less like dragging myself through fog.
3 I have more movement in my joints, I can…
- turn over in bed, automatically and without thinking about it
- move my fingers, type and play the flute (not brilliantly but a damn site better than I was)
- shampoo my hair and wring the water out of it
- wash my hands without pain
- stand for long enough to cook tea and wash the dishes!
- lift a kettle full of boiling water
- lift something in and out of the oven, without a meticulous plan
- pick stuff off the floor
- get down to the floor and back up again
- stand for long enough to clean my teeth
- walk on uneven ground or ice and correct my balance
- run a few steps (if I need to! useful for catching falling children…)
- get out of bed in the morning and stand up straight
4 Doing my job no longer feels like a herculean effort demanding every last ounce of my strength.
So the down sides.
1 I felt exhausted, wiped out, and breathless for months, although that has passed
2 Nausea, I take it weekly, I still feel sick for 2-3 days
3 I don’t sleep well the night I take it
4 I feel wiped out 2-3 days after taking it
5 The regular blood tests make me feel like a “sick person”
6 My blood counts vary, I’m worried I’ll have to stop taking it.
7 Remembering to refill the prescription is a pain (and the “high risk” sticker never makes me feel good).
8 Every time I get any sort of infection I worry I won’t be able to fight it off.
9 Every time my kids/family/friends get sick I worry I’ll get what they’ve got .
10 What (when?) will it stop working for me?